Word: alse
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“Meeting Travis and going through all of his injuries and symptoms basically laid out the whole biology relevant to spinal cord injury and, by analogy, ALS (amyotrophic lateral sclerosis, a disease that attacks the cells in charge of voluntary muscle movement),” says Macklis. ?...
One private-sector initiative already has about 50,000 patients inputting their symptoms and treatment regimens and updating details of their disease progression. Wonder how others are coping with your particular ailment? PatientsLikeMe.com spells it out via color-coded charts and graphs. "When you need help, privacy is a terrible...
In 2008, in response to the publication of a small study indicating that lithium helps people with ALS, the site evaluated the collective experience of its members who had taken the drug and determined that lithium didn't work - a conclusion it reached six months ahead of similar findings from...
Concerned that too many ALS patients pursue sketchy treatments they discover online, Bedlack and about 40 other directors of ALS clinics set up a Twitter feed in April where patients can ask questions about off-label therapies. A team of doctors then investigates each query and posts their medical opinion...
The next logical step? Teach patients to be better scientists. In 2011, ALS researchers plan to launch a crash course similar to one offered for the past two years to Parkinson's patients; in three days it teaches laypeople why clinical studies should be controlled and blinded, and how to...