Word: alse
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But the most unusual communication was with the theoretical physicist Stephen Hawking, author of A Brief History of Time (almost 9 million copies sold), whose battle with ALS (Lou Gehrig's disease) did not keep him from visiting Caltech in March. Charles e-mailed Hawking's assistant, and after making...
For Barbara Lane, 53, and suffering from amyotrophic lateral sclerosis, Haven House, a 20-bed residential hospice in North Atlanta, is living up to its name. ALS invariably kills, but the timing is hard to predict, which runs afoul of the hospice requirement that a patient certifiably have no more...
More than 90% paralyzed and unable to speak by the time she came to Haven House, Lane controls her world by computer. The ALS Association of Georgia, with help from Lane's church, installed $2,000 worth of software in her omnipresent laptop. She can move her left shoulder enough...
Loss of independence, she writes, has been the hardest part of the disease. It takes nearly two hours for her to be bathed and another two to be fed and medicated--with some 12 pills daily. "The disease just takes so much time," says her daughter Kita Turner, 36. The...
Against the odds, Dillon, 56, still exhibits much of the stamina that earned her the sobriquet Energizer Bunny as she arranges author visits, runs writing contests and helps kids find books they will like. But since June 1998, she has had to give up the greatest joy of her job...