Word: bluethmann
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...respondents said they felt abandoned by the medical community after diagnosis, and most wished for a greater range of treatment options other than just pills. "Their impression was that the doctor felt their job was done as soon as the diagnoses was made and the prescriptions written," says Shelley Bluethmann of the Alzheimer's Association...
...Responding to these concerns, Bluethmann's organization has commissioned various projects in hospitals and rehabilitation centers across the U.S. that are intended to supplement pharmacological treatment - from art and music classes to the development of a board game called "Make Memory Together," designed by Gene Cohen at George Washington University. "Our vision is to work for a cure, but we also have an obligation to support the best quality of life for patients living with the disease now," Bluethmann says...
...Bluethmann adds that low-tech activities offer another "hidden" benefit: helping spouses and relatives who care for Alzheimer's patients. Often, caregivers describe the distress and frustration that result from watching a disease slowly rob them of their loved ones as unbearable. They say any reprieve is a godsend. In Newbury, as the group shuffled out after two hours of singing, I asked one man whether he had enjoyed himself. "I liked it very much," he responded. His wife gasped. "He said five words," she said, placing her hand tenderly on his arm, and peering hopefully into his eyes...
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