Word: crowleys
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Dates: during 2010-2019
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...Harvard Business School graduate John F. Crowley, the importance of biotechnology innovation was personal...
...Crowley began fighting for his children’s lives after learning that his young son and daughter suffered from Pompe disease, a rare and progressive neuromuscular disorder that is usually fatal. He quit his job and started his own biotechnology company in search of a cure. Eventually, Cambridge-based biotechnology giant Genzyme acquired Crowley’s company and, in collaboration with Duke University and the Erasmus Medical Center in the Netherlands, ultimately developed Myozyme—a treatment that saved the lives of Crowley’s children...
...movie captures much of the emotional excitement of the search for a cure, Crowley and a Genzyme representative agree...
...Crowley family’s story first appeared in a series of Wall Street Journal articles in 2003, and later in a 2006 book called “The Cure,” by Geeta Anand. In the fall of 2003, after the publication of the newspaper articles, Crowley and his wife began receiving calls from film producers seeking to make a movie about his experiences. It took the couple the better part of a year to get comfortable enough to sell their life-rights and become accustomed to the idea of their family’s struggle being portrayed...
...Crowleys say their decision was ultimately influenced by their trust in Ford, the executive producer of the film who also plays a scientist collaborating with Crowley. The family worked closely with the producers at Doubletree Feature Films throughout the drafting of the screenplay to make sure that the science and family life displayed were accurate...