Word: imperfecta
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...Tell me about Willow, the little girl in your new novel. Willow is a little girl who was born with osteogenesis imperfecta (OI), which is commonly known as brittle bone disease. Willow has the most severe form you can have without dying at birth. She will have hundreds to thousands of bone breaks over the course of a lifetime. She'll wind up with curvature of the spine. She'll have a compromised respiratory system because of the shape of her ribcage. She'll never be more than about three feet tall. It's a very tough physical existence...
...Betty Sheaffer has never been able to go to school because she suffers from osteogenesis imperfecta, an uncommon disorder in which the bones are so fragile that they snap under the slightest strain. She has had about 100 fractures (her parents have lost count), at least two simply from being startled. Last week Betty Sheaffer, 22, graduated from Stowe Township High School, near Pittsburgh, after 13 years of home instruction. Her chosen career : typist, working at home...
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