Word: jessye
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Assisted by a succession of mother's helpers, or "Jessy- friends," Clara painstakingly tutored her child to read, write, say hello, look people in the eye, refrain from bizarre behavior--flying into tantrums, mumbling nonsense words--that might alarm them, and tolerate deviations from routine.
Three decades ago, I was one of the Jessy-friends. She was 11 when I first met her at her parents' home in Williamstown, Mass. Hunched over a cardboard carton filled with tiny squares of paper, she would grab handfuls of paper bits and let them sift down through her...
What a long, long way she has traveled. The last time I saw Jessy, now 42, was a month ago at the opening of an exhibit at the Margaret Bodell Gallery in New York City. On display was a series of 10 unusual architectural paintings. The lines and angles of...
With observation as keen and detail as truly rendered as Jessy's buildings, Clara has documented her daughter's journey from the isolation and limitations of her early years to the vastly increased social integration and competence she enjoys today. Not only does Jessy paint those exquisite paintings--some of...
As Clara tells of the never-ending process of providing Jessy with the tools of everyday living, she illuminates what it is to be human. Though Jessy has not achieved full independence, her growth and development into her fifth decade are cause for celebration, not just for families with disabled...