Word: margaret
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...ensure that it was as inclusive as possible.” Next year, Cohen will move to Ghana where she will either intern with a lawyers’ group focused on advocacy for women and children or teach at a secondary school or university. —Staff writer Margaret W. Ho can be reached at mwho@fas.harvard.edu...
...give Julia a normal childhood. But when Julia's condition worsened, the 8-year-old refused the recommended heart-and-lung transplant, and her parents reluctantly agreed with her decision. Before her death, Julia asked her mother to promise to help other children. "You got me home," she told Margaret in the sign language she used to communicate. "You've got to get them home...
...fulfillment of that promise. The organization has helped more than 7,000 families deal with the myriad issues that come up with home care for children on life support as well as those battling cancer, HIV/AIDS, sickle-cell anemia, muscular dystrophy, cerebral palsy, autism and other conditions. Margaret and her staff of 250 help families navigate the hospital, insurance and Medicaid systems; assist them with school and housing issues; and counsel parents on how to care for the healthy siblings of a sick child...
...clock nursing care (he threw up 18 to 20 times a day), all of which kept him going in and out of the hospital. Putman thought she was on the verge of a nervous breakdown. "When Jake was born, the world as I knew it disappeared," says Putman. "Margaret knows the patient's rights, comes up with a plan, tells you what you need to do and somehow makes it happen," Putman says. "But most important, she gives you hope." Jacob, now 14, is able to participate fully in school and recently traveled to Europe...
...will help them get it. "I called so many agencies looking for help, and SKIP was the only one that even called me back," she says. But there is a waiting list of thousands more families that SKIP, on its shoestring budget, cannot take on without additional resources. Margaret hopes one day to be able to build a clinically staffed residential community. "These families need a respite; they never get a break. They need to be supported in this effort," she says. "Yet it is just indescribable how hard we make it for them. There is so much need wherever...