Word: porphyria
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...dress with extra-long skirt and sleeves, pulled up her gloves, wrapped a kerchief about her face, and stepped nervously into a waiting car with tinted windows. All such precautions, Mrs. Carlson has learned from agonizing experience, are absolutely essential. She suffers from a form of the rare disease porphyria, and to venture into the daylight unprotected for so much as a few seconds causes painful skin eruptions...
...height of her fame ("I've been a clothes horse for fi-i-i-ve years-how do I know I'm not an idi-i-i-ot?") to try her hand at Hollywood scriptwriting and finally became the happy wife of an advertising executive; of porphyria; in Manhattan...