Word: progeria
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Dates: during 2000-2009
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Particular Clark Kents, of course, turn into particular superheroes because of varying talents and inclinations. Leslie Gordon and Scott Berns, for example, were both multidegree doctors--she has an M.D. and a Ph.D., he has an M.D. and a master's in public health--when a doctor friend diagnosed progeria in their 21-month-old son Sam, now 7 (the rare disease causes accelerated aging and often leads to death by early adolescence). The next day, Gordon took a leave from her training in pediatric ophthalmology. Within nine months, she created the Progeria Research Foundation to bring attention...
...Like progeria, A-T is what might be called a superorphaned disease. It affects so few kids--just 400 in the U.S.--that scientists and drug companies don't bother with it. So Margus began applying his business brain to the problem of how to find a cure. He broke it down into smaller problems, assembling a list of things he needed to learn about: molecular biology, how the government funds research, how you capture the interest of top-notch scientists, what lobbying is all about. He decided his approach would be to pollinate as many excellent labs as possible...