Word: skips
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...where the hypermarkets throw out meat and vegetables that have passed their sell-by dates. Madeleine, a 60-year-old mother of 10, lives with several thousand others in the area around the dump. When the truck arrives, it's a ferocious feast. Hundreds of scavengers descend on the skip, elbowing their way into the trash and plunging their hands in deep. "The supermarkets are the best," says Madeleine. "It's in boxes, all arranged." Nor do the inhabitants of Mindwube just find food. There are "plates, dresses, jewelry, liqueurs, TVs, dvds, fridges, children's toys and mobile phones," says...
Sick Kids Need Involved People (SKIP) is the fulfillment of that promise. The organization has helped more than 7,000 families deal with the myriad issues that come up with home care for children on life support as well as those battling cancer, HIV/AIDS, sickle-cell anemia, muscular dystrophy, cerebral palsy, autism and other conditions. Margaret and her staff of 250 help families navigate the hospital, insurance and Medicaid systems; assist them with school and housing issues; and counsel parents on how to care for the healthy siblings of a sick child...
...Some SKIP clients, like Amy Goldman Putman, are relatively fortunate. Her son Jacob was born with serious lung disease and related complications. For the first few years of his life, he was dependent on a respirator and needed a feeding tube and round-the-clock nursing care (he threw up 18 to 20 times a day), all of which kept him going in and out of the hospital. Putman thought she was on the verge of a nervous breakdown. "When Jake was born, the world as I knew it disappeared," says Putman. "Margaret knows the patient's rights, comes...
Other parents like Claudine Votto, the mother of four autistic children--4-year-old triplets and a 3-year-old son--fear that their children will need assistance throughout their lives and worry about who will help them get it. "I called so many agencies looking for help, and SKIP was the only one that even called me back," she says. But there is a waiting list of thousands more families that SKIP, on its shoestring budget, cannot take on without additional resources. Margaret hopes one day to be able to build a clinically staffed residential community. "These families need...
Cheat Sheet. What you won't be able to avoid, what you should see--and what you should skip...