Word: voluntaryism
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If the voluntary code sketched out Thursday fails to curb piracy sufficiently, regulation could still follow. One possibility: the government could force ISPs to install fancy filtering software that blocks illegal file sharing activity. Measures recently proposed in France take an even stricter line: as part of an agreement reached...
Meanwhile, representatives of leading companies, including 23andMe, Navigenics, deCODE Genetics and DNA Direct, have stepped into the void, launching discussions this month in Washington to devise their own voluntary standards, which they expect will promote integrity among their competitors. The companies said they will collaborate with the Personalized Medicine Coalition...
The industry consortium's voluntary guidelines will also address consumer privacy and transparency and encourage companies to be up-front about the limitations of genetic-risk information, says Baker, who is hoping to model the new guidelines on her company's official standards of practice. She envisions that companies' adherence...
What's more, the tests don't always offer consistent results. Linda Avey, co-founder of 23andMe, says consumers have received conflicting results from different companies. That can happen for various reasons: not all tests read the same SNPs to calculate the same risk, and not all risks are calculated...
"I think that industry or professional standards are really important, and in the absence of clear, coherent state and Federal Government oversight, there is an even more important role that industry guidelines can play," Hudson says. "The [drawback] of industry or professional guidelines is that they are voluntary."